Board of Directors
Bill Coogan is the President of The XLH Network, Inc., and is serving a three-year term on the Board of Directors. He became involved with the Network in 2010 through his sister-in-law. She, her son, and her daughter all have XLH, and Bill wanted to help out in any way possible. Bill is originally from the Bronx. His wife (one of fourteen children) is originally from Brooklyn, and they currently reside in Connecticut. Bill and his wife, Liz, are retired.
Joyce Inman is the Vice-President of The XLH Network, Inc., and is serving a three-year term on the Board of Directors. She is currently Chair of the Education, Advocacy, Awareness and Membership Committee, as well as the Principal Investigator of the XLH Natural History Study and Registry. Joyce joined the Network in 2009 when her youngest daughter was diagnosed with a spontaneous case of XLH. Joyce is originally from Florida, but she and her family currently reside in Mississippi where she is the Director of Composition for the University of Southern Mississippi.
Rachael Jones is the Secretary of The XLH Network, Inc., and is currently serving a two-year term on the Board of Directors. Rachael was diagnosed at birth with XLH, the daughter of a spontaneous case, and her two children also have the condition. After attending XLH Day in 2013, she became involved in subsequent XLH Days to help educate parents and children. Rachael was an administrator and teacher for several years before moving to Colorado, where she works as a textbook editor. Rachael enjoys writing and someday hopes to become a children’s author.
Geoff Edelson is currently serving a three-year term on the Board of the XLH Network, Inc. after joining the XLH Network in 2003. He is originally from New Jersey where he was diagnosed with a spontaneous case of XLH as a child in 1962. Geoff currently resides in Massachusetts with his wife and two children. Geoff is currently the Underwater Acoustics Technology Development Manager for BAE Systems Technology Solutions in New Hampshire.
Kathy Buchanan is currently serving a three-year term on the Board of The XLH Network, Inc. Kathy joined the Network in 2001 and was elected to the Board of Directors in 2005. She is originally from Texas and currently resides in Oklahoma. Kathy's son was diagnosed with XLH in early 1983 when he was 3 years old. Kathy is a registered nurse and a certified clinical research coordinator. She has served previously as secretary and president of The XLH Network, Inc.
Christopher Younger is currently serving a three-year term on the Board of The XLH Network, Inc., and he is chair of the Technology Committee. He joined the Network in 2000. Being the only one out of nine children to have XLH, Chris is undoubtedly a spontaneous case and has a passion for XLH advocacy, education and support. He is married and has one non-affected son. Chris is a Component Design Engineer at Intel Corporation, and has worked in the semiconductor industry for 30 years. He also has a love for music, plays guitar and mandolin, and in his spare time he and his wife front a band, performing regularly at local clubs and festivals.
Oliver Gardiner is currently serving a three-year term on the Board of The XLH Network, Inc. He joined the Network in 2003 to reach out to other XLH members. Oliver is originally from Oxford, UK and currently resides in London. He was diagnosed with XLH shortly after birth and comes from a family of twelve XLH patients spanning four generations. Oliver is a Professional Video Editor. He works in design and website design, and he has extensively exhibited work as an artist around the world. He is currently on several committees and is facilitating the creation of a UK-based affiliate of the Network to address local healthcare access issues.
Gin Jones is currently serving a three-year term on the Board of The XLH Network, Inc. She is a lawyer, despite being diagnosed with a spontaneous case of XLH, which left her too short for the judges to see her during sidebars at some of the more grandiose benches in historic Massachusetts courtrooms. She has been a member of the Network since 2002, and served as the membership manager from 2006 to 2011. In her spare time, she writes mystery novels, grows garlic and makes award-winning quilts.
Elizabeth Olear is currently serving a three-year term on the Board of The XLH Network, Inc. She originally joined the Network shortly after accepting a position in Pediatric Endocrinology at the Yale Center for XLH where she is currently the Senior Clinical Research Associate. She founded XLH Day in 2011 to give patients and their families the opportunity to meet each other and to improve education and awareness for the disorder. Elizabeth is on the Education, Advocacy, Awareness, and Membership Committee and chairs the XLH Day Committee. Elizabeth is originally from Connecticut, attended college and graduate school in and around Boston, and currently resides in Connecticut. Her hobbies include yoga, travel, cooking and reading.
Susan Faitos is currently serving a three-year term on the Board of The XLH Network, Inc. Susan joined the Network in 1998, having been diagnosed with a spontaneous case of XLH at 18 months. She is a licensed Marriage and Family Therapist, and currently volunteers with Hospice of Santa Cruz County as well as Live Oak Community Resources. Her spare time is spent either on a bike ride to the beach, taking care of her three godchildren, or fervently trying to keep up with her new puppy.
Sara Show is currently serving a two-year term on the Board of The XLH Network, Inc. She and her family reside in South Dakota. She joined the Network in 2016, after her daughter was diagnosed with XLH, later determined to be a spontaneous case. Sara is an Associate Attorney with a private litigation firm and has had the privilege to work for a Senator, the US Attorney in South Dakota, a State’s Attorney in South Dakota, and several Judges in South Dakota State Court. She enjoys spending time with her husband and their daughter, who has XLH, and son, who does not have XLH. She is also currently a member of the fundraising committee for the Network.
Kimberly Murray is currently serving a one-year term on the Board of The XLH Network, Inc. She resides in Louisiana with her husband Tom and their daughter. Kimberly was diagnosed with XLH as a toddler, and her daughter was diagnosed at six months old. Kimberly has a passion for raising awareness of XLH. She currently works as a branch operations manager. Her hobbies include cooking, traveling, attending music festivals/concerts, and playtime with her daughter.
© The XLH Network Inc.
The authors of this web site are not medical professionals, and this information does not substitute for medical care. Information on these pages is based on biomedical research, published in peer-reviewed journals, and international research conferences. Additionally, in some cases anecdotal information is provided by subscribers to a mailing list and/or members of a forum for The XLH Network Inc. A listing of XLH research is available. Please read our full disclaimer.