Board of Directors
Bill Coogan is the President of the XLH Network, Inc. Bill joined the listserv in 2010. Bill became involved with XLH Network through his sister-in-law. She, her son, & her daughter all have XLH, and he wanted to join the organization to help out in any way possible. Bill is originally from the Bronx. His wife (1 of 14 children) is originally from Brooklyn, and they currently reside in Beacon Falls, Connecticut. Bill and his wife, Liz, are retired.
Joyce Inman is the Vice-President of The XLH Network, Inc., and is serving a three-year term on the Board of Directors. She is currently Chair of the Education, Advocacy, Awareness and Membership Committee, as well as the Principal Investigator of the XLH Natural History Study and Registry. Joyce joined the network listserv in 2009 when her youngest daughter was diagnosed with a spontaneous case of XLH. Joyce is originally from Titusville, Florida, but she and her family currently reside in Mississippi where she is the Director of Composition for the University of Southern Mississippi.
Rachael Jones is the Secretary of The XLH Network, Inc., and is currently serving a two-year term on the Board of Directors. Rachael was diagnosed at birth with XLH, the daughter of a spontaneous case, and her two children also have the condition. After attending XLH Day in 2013, she became involved in subsequent XLH Days to help educate parents and children. Rachael was an administrator and teacher for several years in New Mexico. She recently moved to Colorado with her husband and two children, where she currently works as a textbook editor. Rachael enjoys writing and someday hopes to become a children’s author.
Geoff Edelson is currently serving a three-year term on the Board of the XLH Network, Inc. after joining the XLH Network in 2003. He is originally from Ridgewood, New Jersey where he was diagnosed with a spontaneous case of XLH as a child in 1962. Geoff currently resides in Andover, Massachusetts with his wife and two children. Geoff is currently the Underwater Acoustics Technology Development Manager for BAE Systems Technology Solutions in Merrimack, New Hampshire.
Kathy Buchanan is currently serving a three-year term on the Board of the XLH Network, Inc. Kathy joined the XLH Network in 2001. She is originally from Irving, Texas and currently resides in Broken Arrow, Oklahoma. Kathy's son was diagnosed with what is apparently a spontaneous case of XLH in early 1983 when he was 3 years old. Kathy is employed by the University of Oklahoma-Tulsa as a clinical research nurse in the Surgery Department and is a certified clinical research coordinator. She has served previously as secretary and president of the XLH Network.
Christopher Younger is currently serving a three-year term on the Board of the XLH Network, Inc., and he is chair of the Technology Committee with additional participation in the PR & Communications and Fund Raising Committees. Chris joined the XLH Network in 2000, and resides in Schnecksville PA, a community 60 miles north of Philadelphia. Being the only one out of nine children to have XLH, Chris is undoubtedly a spontaneous case, and was diagnosed in the early 1960’s where treatment consisted of ultra high doses of vitamin D. Chris is married and has one non-affected son. Though XLH is a once and done occurrence in his family, he still has a passion for XLH advocacy, education and support, and is eager to help fulfill the mission of the organization. Chris is a Component Design Engineer at Intel Corporation and has worked in the semiconductor industry for 30 years. Chris has a love for music, plays guitar and mandolin, and in his spare time he and his wife front a band, performing regularly at local clubs and festivals.
Oliver Gardiner is currently serving a three-year term on the Board of the XLH Network, Inc. Oliver joined the XLH Network in 2003 to reach out to other XLH members. Oliver is originally from Oxford, UK and currently resides in London. Oliver was diagnosed with XLH shortly after birth and comes from a family of twelve XLH patients spanning through four generations; his family lives in Oxfordshire and can be contacted through our member page. Oliver is a Professional Video Editor. He works in design and website design, and he has extensively exhibited work as an artist around the world. He is currently working on the committees for Technology, PR & Communication, and Advocacy, Education and Awareness. Oliver chose to serve on the XLH Network, Inc. Board in order to support UK and European XLH Network members.
Gin Jones is currently serving a two-year term on the Board of Directors. She is a lawyer, despite being diagnosed with a spontaneous case of XLH, which left her too short for the judges to see her during sidebars at some of the more grandiose benches in historic Massachusetts courtrooms. She has been a member of the XLH Network, Inc. since 2002, and served as the listserv's subscription manager from 2006 to 2011. In her spare time, she writes mystery novels, grows garlic and makes award-winning quilts.
Elizabeth Olear is currently serving a three-year term on the Board of Directors. She originally joined the Network shortly after accepting a position in Pediatric Endocrinology at the Yale Center for XLH where she is currently the Senior Clinical Research Associate. She founded XLH Day in 2011 to give patients and their families the opportunity to meet each other and to improve education and awareness for the disorder. Elizabeth is looking forward to working on the Education, Advocacy, Awareness, and Membership Committee. Elizabeth is originally from Connecticut, attended college and graduate school in and around Boston, and currently resides in Connecticut. Her hobbies include yoga, travel, cooking and reading.
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The authors of this web site are not medical professionals, and this information does not substitute for medical care. Information on these pages is based on biomedical research, published in peer-reviewed journals, and international research conferences. Additionally, in some cases anecdotal information is provided by subscribers to a mailing list and/or members of a forum for The XLH Network Inc. A listing of XLH research is available. Please read our full disclaimer.