Provide Medical Professional Contact Information

The XLH Network Inc. keeps a database of medical professionals with experience in diagnosing and treating X-Linked Hypophosphatemia and related disorders of phosphate wasting. The XLH Network Inc. members may request physician referral information from our volunteers based upon geographic location. This referral service is free and available to all members of The XLH Network Inc.

If you are a patient and are aware of a medical professional with knowledge of XLH you can enter their contact information below.

If you are a medical or dental professional with experience treating these disorders and would like to be added to our database, please enter your contact information below and we will add you to our database of knowledgeable XLH medical professionals.

The XLH Network Inc. attempts to provide the most accurate and helpful information to our members. We make an effort to suggest specialists who have experience and familiarity with XLH. We are aware of several experts in this field, but it is not always possible to find someone with that level of experience as close to a member's home as the member wishes, and there are physicians with considerable XLH experience whom we are not aware of.

Therefore we need our members to suggest health care professionals in all specialty areas who do have experience in this area. In an effort to help our members find someone geographically closer if they're unable or unwilling to travel to those experts we're aware of, we may suggest a specialist whose name was given to us by another member who found that physician knowledgeable, helpful and informative. Any specialist referral information which we provide should not be considered medical advice or a recommendation. Normal disclaimers apply.

To let us know about a specialist with knowledge of XLH, please fill out the form and press the Submit button.

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Last modified May 3, 2011

© 2002-2011, The XLH Network Inc.
The authors of this web site are not medical professionals, and this information does not substitute for medical care. Information on these pages is based on biomedical research, published in peer-reviewed journals, and international research conferences. Additionally, in some cases anecdotal information is provided by subscribers of the F-HYPDRR group, a mailing list for The XLH Network Inc. A listing of XLH research is available. Please read our full disclaimer.