Find a Doctor

Since XLH is a rare genetic disease, it can be difficult to find doctors with relevant experience diagnosing and treating XLH. Members of the XLH Network, Inc. have access to our worldwide database of medical professionals with XLH expertise.

This service is free and available to all members of the XLH Network, Inc.

Find a Doctor by State

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Help a patient with XLH find the care they need.  If you are aware of a medical professional with knowledge of XLH, please enter their contact information below. If you are a medical professional with experience treating XLH and you would like to be added to our database, feel free to enter your own information.


The XLH Network Inc. attempts to provide the most accurate and helpful information to our members. We are careful to recommend specialists who have experience and familiarity with XLH. However, any specialist referral information which we provide should not be considered medical advice or a recommendation. Normal disclaimers apply.