We’re Creating Healthier, Happier Lives for Those With XLH.

Will You Help Us?

Your contribution helps the XLH Network, Inc. promote awareness for a rare and neglected disease, support research, create resources for affected families, and foster the search for a cure.    

Here’s how you can help:

Donate through PayPal or by credit card

Donate by Check (US banks only). Checks may be mailed to: 

The XLH Network, Inc.
911 Central Ave., #161
Albany, NY 12206

Give Appreciated Stock

Electronic or depository trust company (DTC) transfer of stock through a broker can be made through the Wells Fargo Advisors Financial Network account held by the XLH Network.

For instructions on completing an electronic stock transfer or handling gifts of physical stock certificates, contact one of the following individuals:

  • Geoff Edelson, XLH NetworkTreasurer: xlhaccounts@xlhnetwork.org
  • Chris Inman, CFP®, Financial Advisor with Wells Fargo Advisors Financial Network, LLC at 601-602-3571 or chris.inman@inmanwm.com

Make an Employer-Matching Gift

Many employers have programs to match donations made by their employees.  Check with your employer to see how to add The XLH Network, Inc. to their employer matching gift program.

Consider Planned Giving

Ask your financial and legal advisors about including The XLH Network, Inc. as a beneficiary in your will.

Shop Online:

  • Shop through AmazonSmile, and Amazon will make a donation the XLH Network Inc. 
  • Shop and search online through iGive.com.

Donate airline miles or hotel points.

Your donation helps us get to conferences to raise awareness and educate health professionals about XLH. 

Host a fundraiser.

Even small fundraisers can go a long way when it comes to building our community’s strength. If you'd like to hold a fundraiser, email us at info@xlhnetwork.org giving us your name, email address, phone number and the type of fundraiser you have in mind. 



80% of all donations go towards programs that provide education, outreach and advocacy for families living with XLH. 

The XLH Network, Inc. is a not-for-profit corporation and is recognized in the USA as a tax-exempt 501(c)(3) publicly supported charitable organization.   

Disclosure: A copy of our latest financial report, the registration filed by this organization and a description of our programs and activities may be obtained by contacting us at The XLH Network, Inc., 911 Central Avenue, No. 161, Albany, NY 12206 or by calling 518-527-6236. You may also obtain information upon request from the Attorney General Charities Bureau, 102 Broadway, New York, NY 10271. For specific states you may obtain financial information directly from the state agency.  Click here to see the list of states where this applies.