Privacy Policy

The XLH Network, Inc. does not sell, rent, exchange or otherwise disclose our mailing lists or information about our site visitors, subscribers or members. We subscribe to the HONcode principles of the Health On the Net Foundation.

Our F-HYPDRR mailing list is distributed to members world-wide via the Internet.  It is a moderated subscription list, acting as a semi-public forum in which The XLH Network, Inc. members can share information and their experiences. The XLH Network, Inc. endeavors to include medical professionals and researchers who are particularly interested in XLH, as well as XLH patients and their families.  Although privacy is a matter of serious concern to all of The XLH Network, Inc. members, everyone needs to be aware that information posted via the internet can never be guaranteed to be completely confidential.

Currently we are using Google Analytics to analyze the audience of the website and improve our content. No personal information is collected from Google Analytics. For further information on the privacy policy concerning Google Analytics, please go here,

Please note also that our web site uses Google analytics cookies. By using this website you consent to the use of cookies in accordance with this policy. In particular, you accept the use of cookies. If you do not consent to the use of these cookies please disable them in your browser so that cookies from this website cannot be placed on your device.

For further information of Google’s privacy practices and how this applies to Google analytics, please visit:


© The XLH Network Inc.
The authors of this web site are not medical professionals, and this information does not substitute for medical care. Information on these pages is based on biomedical research, published in peer-reviewed journals, and international research conferences. Additionally, in some cases anecdotal information is provided by subscribers to a mailing list and/or members of a forum for The XLH Network Inc. A listing of XLH research is available. Please read our full disclaimer

Last modified Aug 13, 2017

We comply with the HONcode standard for trustworthy health information: verify here.

Site provided by Vibrant Creative