The XLH Network needs your support to continue to achieve our goal to discover better treatments for this rare and neglected disease. Your contributions help our organization promote awareness, support research, create resources for affected families, and foster the search for a cure.    

There are many ways to help us:

Contribute worldwide via PayPal or Credit Card:


Checks (USA banks only) may be mailed to: 

The XLH Network, Inc.
911 Central Ave., #161
Albany, NY 12206


Giving Appreciated Stock

Electronic or depository trust company (DTC) transfer of stock through a broker can be made through the Wells Fargo Advisors Financial Network account held by the XLH Network. For instructions on completing an electronic stock transfer or handling gifts of physical stock certificates, contact one of the following individuals:

Geoff Edelson, XLH NetworkTreasurer:

Chris Inman, CFP®, Financial Advisor with Wells Fargo Advisors Financial Network, LLC at 601-602-3571 or

The Network will need to know the donor name, address, phone number, email address, and details of the contribution so we can acknowledge the gift.

Employer Matching Gift

Many employers have programs to match donations made by their employees.  Check with your employer to see how to add The XLH Network, Inc. to their employer matching gift program.

Planned Giving

Ask your financial and legal advisors about including The XLH Network, Inc. as a beneficiary in your will or whether there may be ways to help us that would also benefit you financially while you're still alive.  

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The XLH Network, Inc. is a not-for-profit corporation and is recognized in the USA as a tax-exempt 501(c)(3) publicly supported charitable organization.   


Disclosure: A copy of our latest financial report, the registration filed by this organization and a description of our programs and activities may be obtained by contacting us at The XLH Network, Inc., 911 Central Avenue, No. 161, Albany, NY 12206 or by calling 518-527-6236. You may also obtain information upon request from the Attorney General Charities Bureau, 102 Broadway, New York, NY 10271.

For specific states you may obtain financial information directly from the state agency.  Click here to see the list of states where this applies.


The XLH Network needs your support to continue to achieve our goal to discover better treatment and ultimately a cure for this rare and neglected heritable bone disease affecting 1 in 20,000 children and adults worldwide. To date there is no cure for XLH, and the current treatment is not always successful and often includes damaging side effects.

The XLH Network contributes to research efforts geared toward finding a cure for XLH in an attempt to improve the future for every child and adult affected with this disease. Your donations help our organization continue to raise awareness among medical and patient communities in invaluable ways.

The XLH Network is currently funded entirely by donations from those people whose families and friends are afflicted with XLH. Please consider making a donation to help ensure better lives for those living with XLH.

© 2011, The XLH Network Inc.
The authors of this web site are not medical professionals, and this information does not substitute for medical care. Information on these pages is based on biomedical research, published in peer-reviewed journals, and international research conferences. Additionally, in some cases anecdotal information is provided by subscribers to a mailing list and/or members of a forum for The XLH Network Inc. A listing of XLH research is available. Please read our full disclaimer 

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Last modified Feb 8, 2018

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