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The XLH Network is proud to host events that connect XLH-affected individuals, their families, and the broader medical community.
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Monthly Weekly Daily List
July 2024
2nd Annual XLH Kid’s Camp
This special week of camping in Kentucky is open to ...
August 2024
XXLH — Young Adults Support Group
This confidential support group for young adults meets monthly on ...
Women’s Group
A support group for women of all ages living with ...
Men’s Group
A support group for men of all ages living with ...
LGBTQ + XLH Peer Support Group
This is an invitation for folks with XLH who also ...
September 2024
XXLH — Young Adults Support Group
This confidential support group for young adults meets monthly on ...
Women’s Group
A support group for women of all ages living with ...
LGBTQ + XLH Peer Support Group
This is an invitation for folks with XLH who also ...
October 2024
Parents of Spontaneous XLHers
Parents of children with spontaneous XLH have a different path ...
XXLH — Young Adults Support Group
This confidential support group for young adults meets monthly on ...
XLH DAY 2024
XLH DAY 2024 will be held in
Raleigh, North Carolina.
Watch ...
Women’s Group
A support group for women of all ages living with ...
No event found!
A Worldwide Patient Support Organization for People Living and Dealing with X-Linked Hypophosphatemia (XLH)
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A Worldwide Patient Support Organization for People Living and Dealing with X-Linked Hypophosphatemia (XLH)
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