As a community, we are stronger together.

That’s why we’re committed to connecting those living with XLH to each other and to the care they need.

Join our community today and access our XLH community forum!

What is Living With XLH Really Like?

Meet some of our friends and family living with XLH. ​​​​​​

Make Your Voice Heard

When it comes to rare genetic diseases like XLH, every patient counts. If you have XLH, you can use your voice to help XLH treatment and research by enrolling in BeyondXLH, an online disease-monitoring program for patients with X-linked hypophosphatemia (XLH) and other chronic hypophosphatemic disorders.”

Learn more about BeyondXLH.

XLH organizations around the world

The XLH Network Inc is a member of the International XLH Alliance, an alliance of patient groups for individuals affected by X-linked hypophospatemia and related disorders.

 

Stay updated on all things XLH! Follow us on