That’s why we’re committed to connecting those living with XLH to each other and to the care they need.
When it comes to rare genetic diseases like XLH, every patient counts. If you have XLH, you can use your voice to help XLH treatment and research by enrolling in BeyondXLH, an online disease-monitoring program for patients with X-linked hypophosphatemia (XLH) and other chronic hypophosphatemic disorders.”
The XLH Network Inc is a member of the International XLH Alliance, an alliance of patient groups for individuals affected by X-linked hypophospatemia and related disorders.
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