News
March 4th
Registration for West Coast XLH Day (April 9-10) begins on Monday. We hope you will join us in Novato, California, to meet other families dealing with XLH, discuss the challenges, learn how others cope, and develop new strategies for managing your own or …
March 2nd
. . . but TOGETHER we are STRONG.That's the motto for Give RARE Day.We hope you'll participate and support the XLH Network, Inc. Our page is here: http://giverare.razoo.com/story/Xlh-NetworkIf  you can donate, that's great. If you can't, there a…
February 24th
Rare Disease Day (February 28) is mostly about bringing attention to all of the diseases and their impacts. New this year is a related fundraising day, Give RARE Day, on March 3. The event was designed to acknowledge that more people are directly affected…
February 18th
Please save the date so you can join us for West Coast XLH Day on April 9-10, in Novato, California, to meet other families dealing with XLH, discuss the challenges, learn how others cope, and develop new strategies for managing your own or your child’s s…
February 11th
The last day of February is World Rare Disease Day, which is intended to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.World Rare Disease Day is, as its name suggests, a global under…
February 4th
The Network's Board met on Sunday to select the portions of our Strategic Plan that we intend to accomplish this year.  Here’s a bit on the priorities for 2015.Plans are underway for West Coast XLH Day to be held on April 9-10, 2015&nb…
January 28th
We are all excited about the possibilities that 2015 brings for families with XLH, and we hope you are too! But as this first month of the year comes to an end, we wanted to express our appreciation for all of you who gave to our end-of-the-year campaign.…
January 21st
This week, we've got an interview of Board Director Kathy Buchanan. 1. How did you get involved with the XLH Network, and then how did you become a member of the Board of Directors?I had searched the internet years ago trying to find more information…
January 14th
We've always been an international organization, founded by XLHers in the United States and the United Kingdom, but we're becoming more global every day.Most recently, we've added a translation feature to our website. You'll find it in the upper right cor…
January 14th
Siempre hemos sido una organización internacional , fundada por XLHers en los Estados Unidos y el Reino Unido, pero nos estamos volviendo más global cada día .Más recientemente , hemos añadido una función de traducción en nuestro sitio web. Lo encontrará …

© 2011, The XLH Network Inc.
The authors of this web site are not medical professionals, and this information does not substitute for medical care. Information on these pages is based on biomedical research, published in peer-reviewed journals, and international research conferences. Additionally, in some cases anecdotal information is provided by subscribers of the F-HYPDRR group, a mailing list for The XLH Network Inc. A listing of XLH research is available. Please read our full disclaimer

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Last modified Nov 22, 2014


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