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A worldwide patient support organization for people living and dealing with x-linked hypophosphatemia (XLH)

Please donate to help us continue our mission of providing education, connection, and advocacy services to families living with XLH. Click the link below to donate:

 

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What is XLH

X-Linked Hypophosphatemia (XLH) is a rare genetic disorder that affects about one in 20,000 people. The key characteristic of XLH is a low level of phosphorus in the blood, called Hypophosphatemia. When a person is affected by XLH, their kidneys do not properly handle Vitamin D and phosphorus. This causes a variety of symptoms and disorders that usually affect their bones and teeth. Learn More...

 

DOWNLOAD A COPY OF OUR RARE DISEASE ALERT CARD HERE!

 

 



Upcoming Events






 

 

 

 

Voice of the Patient Report.

 

Report and transcripts from
The Symposium on Hypophosphatemia

 

 

 

 

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