Don't forget to join us for our May 1 webinar and question and answer session on Crysvita®. No preregistration required. Click on the link to join and please help spread the word!
Watch the replay on our YouTube Channel:
We are thrilled to announce that the U.S. Food and Drug Administration has approved burosumab, commerically known as Crysvita. This is a life-changing event for those with XLH . Please see video below for full statement.
Click HERE to read or download the Frequently Asked Questions regarding this important announcement.
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The authors of this web site are not medical professionals, and this information does not substitute for medical care. Information on these pages is based on biomedical research, published in peer-reviewed journals, and international research conferences. Additionally, in some cases anecdotal information is provided by subscribers to a mailing list and/or members of a forum for The XLH Network Inc. A listing of XLH research is available. Please read our full disclaimer.