Sale on 2024 Calendars!

This past summer, children who attended XLH Kid's camp created artful masterpieces for a 2024 calendar. Order yours today for just $20.00, $15, or $10 if you buy 5 or more!

Scroll to the bottom of this page for order details.


Learn Funnel

Learn About XLH

X-Linked Hypophosphatemia (XLH)
is a rare genetic disorder affecting about one
in 20,000 people. 


Find a Doctor.3

Find a Doctor

Since XLH is a rare genetic disease, it can be difficult to find doctors with relevant experience diagnosing and treating XLH. 



Join Our Community

Become a member of the XLH Network today. The XLH Network is the main hub of connection and support for those living with XLH.


The XLH Network supports families and individuals living with X-Linked Hypophosphatemia (XLH).

Our mission includes promoting awareness and education, providing opportunities for connection and community, and to foster the search for a cure.

Our vision is early, accurate diagnosis; readily-available, well-managed treatment; and healthy quality of life for those who are affected with XLH and related disorders.

A Worldwide Patient Support Organization for People Living and Dealing with X-Linked Hypophosphatemia (XLH)

Network Events

I am so glad I found the Network! I have learned so much about my condition that I never knew. I feel more confident about the future knowing I have all of you to count on!

Before we found the XLH Network, we were scared and confused. Our doctor didn’t seem to know much about my daughter’s condition. Now I have a way to get information plus I have a new family.

The people at the Network are like family to me. Nobody else “gets” it and I look forward to seeing everyone each year at XLH Day.


We’re creating healthier, happier lives for those with XLH. Will you help us?


Contact Us

The XLH Network, Inc.
911 Central Ave., #161
Albany, NY 12206



Contact Us

Please let us know what's on your mind. Have a question for us? Ask away.

XLH Network

A Worldwide Patient Support Organization for People Living and Dealing with X-Linked Hypophosphatemia (XLH)

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New! Discounted Price! Kid's Camp Calendar Order Form

Please complete form to order. Payment options will show in this space after you click "submit" (scroll back down if you don't see the options).

Price: $15.00
Order up to 4 calendars at $15/ea
Price: $10.00
5 or more: $10/ea