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A worldwide patient support organization for people living and dealing with x-linked hypophosphatemia (XLH)

What is XLH

X-Linked Hypophosphatemia (XLH) is a rare genetic disorder that affects about one in 20,000 people. The key characteristic of XLH is a low level of phosphorus in the blood, called Hypophosphatemia. When a person is affected by XLH, their kidneys do not properly handle Vitamin D and phosphorus. This causes a variety of symptoms and disorders that usually affect their bones and teeth. Learn More...

 

Voice of the Patient Report.

 

Report and transcripts from
The Symposium on Hypophosphatemia

 


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Click HERE to access this toolkit to help you understand and explain XLH to your family and care team.


JUNE 23RD IS XLH AWARENESS DAY! 

SEND THIS FORM TO YOUR GOVERNOR TO MAKE SURE THE DAY IS PROCLAIMED IN YOUR STATE!

Download Sample Proclamation Request

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