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A worldwide patient support organization for people living and dealing with x-linked hypophosphatemia (XLH)


What is XLH

X-Linked Hypophosphatemia (XLH) is a rare genetic disorder that affects about one in 20,000 people. The key characteristic of XLH is a low level of phosphorus in the blood, called Hypophosphatemia. When a person is affected by XLH, their kidneys do not properly handle Vitamin D and phosphorus. This causes a variety of symptoms and disorders that usually affect their bones and teeth. Learn More...












Report and transcripts from

The Symposium on Hypophosphatemia

June 23rd is XLH Awareness Day! 

Send this form to your governor to make sure the day is proclaimed in YOUR state!

Download Sample Proclamation Request


Upcoming Events


Program Title: Virtual Meet & Greet

Date: April 17, 2020

Time: TBA

Location: www.facebook.com/xlhnetwork

Type of Activity: Networking, Social


Program Title: XLH Day 2020

Date: October 9-10, 2020

Time: TBA

Location: Phoenix Children's Hospital, Phoenix, Arizona

Type of Activity: Conference, Education, Networking, Social






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