Community. Education. Advocacy. Compassion
A NON-PROFIT WORLDWIDE PATIENT SUPPORT ORGANIZATION FOR PEOPLE LIVING WITH X-LINKED HYPOPHOSPHATEMIA (XLH).
Learn About XLH
X-Linked Hypophosphatemia (XLH)
is a rare genetic disorder affecting about one
in 20,000 people.
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Find a Doctor
Since XLH is a rare genetic disease, it can be difficult to find doctors with relevant experience diagnosing and treating XLH.
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Join Our Community
Become a member of the XLH Network today. The XLH Network is the main hub of connection and support for those living with XLH.
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The XLH Network supports families and individuals living with X-Linked Hypophosphatemia (XLH).
Our mission includes promoting awareness and education, providing opportunities for connection and community, and to foster the search for a cure.
Our vision is early, accurate diagnosis; readily-available, well-managed treatment; and healthy quality of life for those who are affected with XLH and related disorders.
The XLH Network is proud to be affiliates of:
Network Events
XLH KIDS CAMP
Center for Courageous Kids
Scottsville, Kentucky
XLH Day 2026
Indianapolis
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We’re creating healthier, happier lives for those with XLH. Will you help us?
Contact Us
The XLH Network, Inc.
911 Central Ave., #161
Albany, NY 12206
XLH Network
A Worldwide Patient Support Organization for People Living and Dealing with X-Linked Hypophosphatemia (XLH)
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