Community.
Education.
Advocacy.
Compassion.

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Learn About XLH

X-Linked Hypophosphatemia (XLH)
is a rare genetic disorder affecting about one
in 20,000 people. 

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Find a Doctor

Since XLH is a rare genetic disease, it can be difficult to find doctors with relevant experience diagnosing and treating XLH. 

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Join Our Community

Become a member of the XLH Network today. The XLH Network is the main hub of connection and support for those living with XLH.

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The XLH Network supports families and individuals living with X-Linked Hypophosphatemia (XLH).

Our mission includes promoting awareness and education, providing opportunities for connection and community, and to foster the search for a cure.

Our vision is early, accurate diagnosis; readily-available, well-managed treatment; and healthy quality of life for those who are affected with XLH and related disorders.

A Worldwide Patient Support Organization for People Living and Dealing with X-Linked Hypophosphatemia (XLH)

Network Events

I am so glad I found the Network! I have learned so much about my condition that I never knew. I feel more confident about the future knowing I have all of you to count on!

Before we found the XLH Network, we were scared and confused. Our doctor didn’t seem to know much about my daughter’s condition. Now I have a way to get information plus I have a new family.

The people at the Network are like family to me. Nobody else “gets” it and I look forward to seeing everyone each year at XLH Day.

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We’re creating healthier, happier lives for those with XLH. Will you help us?

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Contact Us

The XLH Network, Inc.
911 Central Ave., #161
Albany, NY 12206

518-350-9541
info@xlhnetwork.org

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XLH Network

A Worldwide Patient Support Organization for People Living and Dealing with X-Linked Hypophosphatemia (XLH)

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