XLH Day Event Gallery

Los Angeles, California. September 2023

Save the date for next year’s XLH Day in Raleigh, North Carolina: 10/12/23.

Meeting our new family, building a way better understanding of XLH and learning what steps to take to help Tobias’s journey are just priceless. I am so emotional over this past weekend, I still can’t stop holding back the tears. Just totally engulfed with hope, gratitude and love from the xlh conference. Thank you from the bottom of my heart.”


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Albany, NY 12206



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A Worldwide Patient Support Organization for People Living and Dealing with X-Linked Hypophosphatemia (XLH)

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