COUNTDOWN TO XLH DAY 2024!

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Informative & Educational Sessions

A full day and a half of sessions tailored to your specific needs. Along with our keynote and whole-group sessions, you can choose from topics such as pediatric concerns, adult issues, advocating, navigating education issues, and so much more!

Networking & Support

Meet others in your area or who share your experience. Learn about the resources available to you and get tips from others on how to support a family living with XLH, either as a patient or a caregiver.

Connection & Fun

Kick back, relax and have some fun on us!  Join us Friday evening for an outdoor BBQ. Then on Saturday night,  we are headed to the Marbles Museum for dinner and adventure!

Wellness

Our theme this year is creating wellness. How do we bring our best selves to the table, both physically and emotionally?

XLH Day 2024 will be held at The Westin at Raleigh-Durham Airport in North Carolina.  Highlights for 2024 include:

Pre-conference informal sessions discussing changing roles and challenges of transition from adolescence to adulthood.

Friday night BBQ event.

Full day Saturday of informative speakers and individually tailored breakout sessions.

Saturday night event at the Marbles Museum in Raleigh.

Informal coffee farewell Sunday morning.       

One complimentary hotel night (Friday, 10/11/24) at the Westin included with registration.

 Free childcare provided during the day on Saturday 10/12.

Admission: Cost is $35 per adult; $25 for ages 6 thru 17; 5 or under free. Family of four or more: $110.

Financial assistance is available. See registration page.

 

XLH Day Event Gallery

Los Angeles, California. September 2023

Save the date for next year’s XLH Day in Raleigh, North Carolina: 10/12/23.

Meeting our new family, building a way better understanding of XLH and learning what steps to take to help Tobias’s journey are just priceless. I am so emotional over this past weekend, I still can’t stop holding back the tears. Just totally engulfed with hope, gratitude and love from the xlh conference. Thank you from the bottom of my heart.”

Daniela

Contact Us

The XLH Network, Inc.
911 Central Ave., #161
Albany, NY 12206

518-350-9541
info@xlhnetwork.org

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A Worldwide Patient Support Organization for People Living and Dealing with X-Linked Hypophosphatemia (XLH)

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