COUNTDOWN TO XLH DAY 2024!

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Informative & Educational Sessions

A full day and a half of sessions tailored to your specific needs. Along with our keynote and whole-group sessions, you can choose from topics such as pediatric concerns, adult issues, advocating, navigating education issues, and so much more!

Networking & Support

Meet others in your area or who share your experience. Learn about the resources available to you and get tips from others on how to support a family living with XLH, either as a patient or a caregiver.

Connection & Fun

Kick back, relax and have some fun on us!  Join us Friday evening for an outdoor BBQ. Then on Saturday night,  we are headed to the Marbles Museum for dinner and adventure!

Wellness

Our theme this year is creating wellness. How do we bring our best selves to the table, both physically and emotionally?

XLH Day 2024 will be held at The Westin at Raleigh-Durham Airport in North Carolina.  Highlights for 2024 include:

Pre-conference informal sessions discussing changing roles and challenges of transition from adolescence to adulthood.

Friday night BBQ event.

Full day Saturday of informative speakers and individually tailored breakout sessions.

Saturday night event at the Marbles Museum in Raleigh.

Informal coffee farewell Sunday morning.       

One complimentary hotel night (Friday, 10/11/24) at the Westin included with registration.

 Free childcare provided during the day on Saturday 10/12.

Admission: Cost is $35 per adult; $25 for ages 6 thru 17; 5 or under free. Family of four or more: $110.

Financial assistance is available. See registration page.

 

XLH DAY 2024 ART CONTEST

 Have you ever wanted to design a T-shirt and see it worn on over a hundred people? Here’s your chance!

Design a T-shirt for XLH Day 2024 in Raleigh North Carolina.

The XLH Network wants to display the artistic talents of our community as part of XLH Day 2024. We invite individuals impacted by XLH and related disorders to contribute. Winning artist will receive 2 nights free hotel at XLH Day (up to 4 people per room), and up to 4 paid registration fees. Be creative! It can be something related to North Carolina, something about XLH, or whatever you want! See full rules below:

XLH DAY T-Shirt Art Contest Rules

Please read through the contest rules, eligibility requirements, and full submission guidelines below:

 

Eligibility:

  • Artists must be 18 years or older, or have a parent sign the artwork on their behalf.

  • Artist must directly be impacted by XLH or a related disorder such as TIO. This includes, but is not limited to:

    • Individuals living with XLH.

    • Caregivers providing direct support to an individual with XLH.

  • Staff and board members of the XLH Network, and their families, are not eligible to submit artwork for this contest.

  • This contest is void where prohibited by law.

Originality:

  • Each submission must be an original and unpublished work created by the participant.

  • Participants agree that their design is intended solely for the purpose of this contest and has n ot been used elsewhere.

  • Submissions should not have been previously published or used in any other contests or platforms.

  • Submissions that appear to be endorsements of a particular rare disease treatment or therapy will be disqualified.

  • Submissions must not contain, incorporate, or otherwise use any content, material, element, or logos owned by a third party or entity.

  • Participants should ensure that their designs are free from any copyright or intellectual property violations.

Submission Guidelines:

  • Each artist is permitted to submit one (1) design.

  • Designs to be submitted in digital format. (See accepted file types and sizes below.)

  • Accepted Formats:

    • Designs must be submitted in digital format.

    • Submissions must be in a two-dimensional format.

    • Designs cannot include videos, GIFs, or any other three-dimensional elements.

    • Acceptable file formats include EPS, JPEG, PNG.

    • Submissions should be high resolution to ensure clarity and print quality.

    • A minimum resolution of 300 DPI is required.

    • The submission is two-dimensional and scannable (e.g., no videos or GIFs).

    • Color mode: Designs must be set to CMYK.

    • File size: not to exceed 25MB.

Judging Criteria:

    • Each judge will score submissions independently, and the final scores will be compiled to determine the winning designs.

    •  Scoring System:  Judges will score submissions on a scale of 1 to 5 in each category, with 1 being the lowest and 5 being the highest.

    •  Designs will be judged based on their ability to effectively capture and convey the essence of the theme and visual appeal.

    • Judges will not have access to artist’s names so that they may remain objective and impartial.

Deadline:

  • Submissions must be received through the online submission form by July 31st, 2024 at 11:59 pm Eastern Time.

  • Late submissions will not be considered.

Notification:

Winners will be notified by email on 8/15/2024. Winner must respond within 3 days, or the runner-up will be selected. 

Please contact us with any questions or inquiries at: executivedirector@xlhnetwork.org,

 

 

 

XLH Day 2024 Art Contest

Entry Form and Submission Portal

MM slash DD slash YYYY
Name(Required)
If artist is under 18 years of age, parent's name
Email(Required)
Address
Max. file size: 300 MB.