“It has meant so much to me to know there are others out there and I’m not alone. I now know a whole network of people who understand what I’m going through.”
DANAYA
Danaya is a talented makeup artist and dance coach who lives in San Antonio, Texas. She was diagnosed with XLH at two years old through bloodwork, but she has never let XLH stop her from accomplishing her dreams!
Thank you, Danaya for sharing your story with us!
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A Worldwide Patient Support Organization for People Living and Dealing with X-Linked Hypophosphatemia (XLH)
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