Parents of Spontaneous XLHers
Parents of children with spontaneous XLH have a different path to go down than those with XLH already in their families. This ongoing, confidential group is designed to offer support to those parents, whether their children are newly-diagnosed, or teens.
This group meets quarterly, on the first Tuesday of the month. 2024’s meetings are scheduled for January 2nd, April 2nd, July 2nd and October 1st. All meetings are at 7pm ET/4pm PT.