COUNTDOWN TO XLH DAY 2024!

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Informative & Educational Sessions

A full day and a half of sessions tailored to your specific needs. Along with our keynote and whole-group sessions, you can choose from topics such as pediatric concerns, adult issues, advocating, navigating education issues, and so much more!

Networking & Support

Meet others in your area or who share your experience. Learn about the resources available to you and get tips from others on how to support a family living with XLH, either as a patient or a caregiver.

Connection & Fun

Kick back, relax and have some fun on us!  Join us Friday evening for an outdoor BBQ. Then on Saturday night,  we are headed to the Marbles Museum for dinner and adventure!

Wellness

Our theme this year is creating wellness. How do we bring our best selves to the table, both physically and emotionally?

XLH Day 2024 will be held at The Westin at Raleigh-Durham Airport in North Carolina.  Highlights for 2024 include:

Pre-conference informal sessions discussing changing roles and challenges of transition from adolescence to adulthood.

Friday night BBQ event.

Full day Saturday of informative speakers and individually tailored breakout sessions.

Saturday night event at the Marbles Museum in Raleigh.

Informal coffee farewell Sunday morning.       

One complimentary hotel night (Friday, 10/11/24) at the Westin included with registration.

 Free childcare provided during the day on Saturday 10/12.

Admission: Cost is $35 per adult; $25 for ages 6 thru 17; 5 or under free. Family of four or more: $110.

Financial assistance is available. See registration page.

 

LGBTQ + XLH Peer Support Group

This is an invitation for folks with XLH who also identify as LGBTQ+ to join us on the fourth Thursday of each month at 6:30pm EST via Zoom. Bring your favorite beverage and snack and let’s introduce ourselves! Those who feel comfortable can also share with each other our stories of being both part of the LGBTQ+ community and the XLH community.

Email us at info@xlhnetwork.org for the Zoom link.

Date

Sep 26 2024

Time

6:30 pm - 7:30 pm
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