“Being a part of this incredible organization and being able to help and talk with others has added extra special meaning in my life…”
Kim M.
Kim is a former Network Board Member and is from Louisiana. Kim was diagnosed with XLH when she was two years old after her mother kept advocating for her and fought for a correct diagnosis. In 2015 she had a genetic test to confirm that she had XLH, and subsequently she was able to get an early diagnosis for her daughter via genetic testing as well.
Thank you, Kim, for sharing your story with us!
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