Happy XLH Awareness Month to all! Welcome to our new website! We are excited to roll this out and share the new features:

Event Calendar: A one-stop shop to see all Network events and activities. Register for our events right from the calendar page.

Doctor Database: Locate a physician near you.

Chat Feature: Think of it like a Facebook group, but for everyone.

Advocacy Page: A page devoted solely to our advocacy efforts and how you can participate.

Network Store: Coming very soon!

Plus: current news and updates, newsletter archives, and much more!

This space will provide network updates and the latest news we want to share with you. It will include reminders about registration deadlines, fundraising campaigns, etc. It will also be an opportunity for a member to be a “guest blogger”. More on that soon!

We always want to know how we can improve the services to our members. If you have a suggestion for this website, please let us know by emailing executivedirector@xlhnetwork.org.