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The XLH Network is proud to host events that connect XLH-affected individuals, their families, and the broader medical community.
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March 2024
Aging with XLH
Aging with XLH is a confidential support group for those ...
April 2024
Parents of Spontaneous XLHers
Parents of children with spontaneous XLH have a different path ...
XXLH — Young Adults Support Group
This confidential support group for young adults meets monthly on ...
Kids Club: “The Pup Squad”
Members of the Kids Club will receive fun activity boxes ...
Women’s Group
A support group for women of all ages living with ...
Aging with XLH
Aging with XLH is a confidential support group for those ...
May 2024
XXLH — Young Adults Support Group
This confidential support group for young adults meets monthly on ...
Men’s Group
A support group for men of all ages living with ...
Women’s Group
A support group for women of all ages living with ...
Aging with XLH
Aging with XLH is a confidential support group for those ...
June 2024
XXLH — Young Adults Support Group
This confidential support group for young adults meets monthly on ...
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A Worldwide Patient Support Organization for People Living and Dealing with X-Linked Hypophosphatemia (XLH)
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911 Central Ave., #161
Albany, NY 12206
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XLH Network
A Worldwide Patient Support Organization for People Living and Dealing with X-Linked Hypophosphatemia (XLH)
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